I reject your reality and substitute my own

So I wanted to move Lo to a toddler bed. Mostly because I finally ordered her new bedding and I was super pumped to get it on a bed... not a crib.

This is sign on her door I got off ebay. I wish it was closer, because the mermaid looks like the middle aged version of the mermaid on her bedding... maybe the lady that sales these should keep her day job. But it works!

Anyway... she screamed for about an hour and a half. I finally got her to sleep and laid on my bed to listen and make sure she didn't get up and start playing when "THUMP!" and then crying. She had fallen off the bed. I go in and lay her down, she didn't even really wake up.... This happened 6 times. One time, she was clear cross the room and I couldn't find her until I stepped on her. This was at 2 am and I was exhausted. So I threw the mattress in her crib and put her down.

Of course she slept fine the rest of the night... {insert really long story about her waking with another ear infection here... I'll save that for another day}.

Tonight she completely freaked out again, screamed for a while, but she's actually asleep now... on top of the bed. So knock on wood... however I am not too proud to put that mattress right back in that crib and not letting her out until she's 10. Don't think I won't do it if it means I get sleep at night.

Ty is in Texas tonight and all I wanted was to keep Lo in bed with me and cuddle and fall asleep. Started off well enough... she was totally pumped to sleep in mommys bed. She ran over to the bed and when I lifted her up she laid down and snuggled in. Then she started tossing and turning, so I asked if she wanted to watch a show. Of course she wanted to watch yo gabba gabba. Bad idea, 2 seconds later she is singing and dancing and jumping on the bed. For about 10 minutes I laid her back down and told her to settle down, then I threatened her. I told her if she doesn't lay down she'll have to sleep in her bed. Thinking that would get her to lay down immediately, I was surprised when her response was "ya! mommy- Lorelai bed!" and she ran into her room.

Boo... oh well, Tullys in bed with me now. Other than dog breath and the occasional fart, she's a pretty good cuddle bug.

My next kid better be a cuddler or I'm sending him/her back! ;)

These are posts from my old blog... there are many of them, but I just wanted to keep them somewhere... so here they are:


2004-06-27 06:31:26
So- I guess I should dive in head first with this thing. I can't promise this will always be interesting- but I promise that occasionally you'll be entertained. Today Ty and I went to a picnic that some people from Weight Watchers online threw. I hadn't met any of them, but I talk to them on a daily basis online. It was a blast. Ty and I are pretty sheltered here in Bremerton. We don't get out that much and we don't meet new people ever. I think we forgot how to socialize, but it was just like riding a bicycle... easy as pie.

5 things on my To Do List (daily? weekly? what?)

1. catch up on my tivo
2. exercise
3. never ending cleaning (especially with Lo's staph... new towels and washclothes everyday, sheets every other day, bleach scrub bath tub)
4. get my pictures organized on my computer
5. feed the herd of pets

5 jobs I have had:
1. Boston Market
2. Manager at Inkleys
3. Photographer for The Spectrum
4. Front desk clerk/waitress/asst catering and event coordinator at Holiday Inn
5. currently Certified Radiology Coder, yes... I can officially put RCC after my name

5 places I've lived:
1. Cali
2. St. George, Utah
3. Colorado
4. Washington
5. don't be deceived... I've never actually lived in the same house longer than 3 years my entire life.

5 Favorite Snacks:
1. I'm not a big snacker, not even a big eater. Really just live off of a 24 oz white mocha in the am and dinner. Not healthy and clearly not helping me lose weight.

5 Things I would do if I were a billionaire:
1. pay off my house and remodel!
2. create security for my family and my chosen family here in b-town
3. invest
4. financially back an animal shelter
5. party like a rock star!

5 things you may not know about me (there isn't much, I'm an open book):
1. I have VERY strong opinions about everything, but I don't force them on anyone because I think everyone deserves the same right that I have.
2. I don't like drama... I will swallow my pride 8,000 times before I pick a fight with anyone (even if I am right).
3. I wish I could have been a professional dancer.
4. I wish more than anything I could find my niche. I got my cards read not too long ago and she said I need to just enjoy where I am right now in my life and I am trying... I am. But I wish I just had something professionally I could get excited about. My marriage is awesome, my kid is amazing, my house rocks, my friends are the best, my family loves me... it's the one thing that missing.
5. I love to sleep... I would stay in bed all day long sleeping if I could. Maybe that's because my kid didn't sleep longer than hour long stretches until she was 9 months old so I can't get over how amazing an entire night sleep is.

Everyone I know on blogger has done this... so it ends with me. sorry.

Ty usually gives Lo her baths, but he is brewing tonight, so I bathed her. I got her out of the tub and then I went hunting through mounds of laundry for pajamas. I wasn't in my room for more than 2 minutes so it was really funny to see her sitting on the couch, completely naked, with the lap top.

I usually discourage playing with the lap top, but it was too funny to not get a pic. Her daddy will be so proud when I show him the pic tonight!

I think when Lo was about 13 months she got her first staph infection on her bum. I thought it was just a diaper rash but a pimple developed and grew and grew and then she got little pimples on her tummy and she got a fever. I took her to the doctor, they did a culture and we found out it was staph. The doctor gave us antibiotics and a cream to use for a few weeks and we were on our way. No more than a week after the antibiotics were done she got another bump. This happened like clockwork for the next few months. After 4 episodes, I started to worry about giving Lorelai so many antibiotics and the treatment was clearly not working. I repeatedly had discussions with the doctor about different treatment options, preventative treatments and he had no suggestions or options. It's not just antibiotics that worry me. Every time she got the infection it had to be lanced and the infection squeezed out. This is not a pleasant experience for an adult I would imagine, but 10 times worse for a one year old. I hated to hold her down as she has a mass on her bum cut open and squeezed. It broke my heart every single time. Not to mention that staph is a very serious infection that has killed a number of toddlers. It scares me to death that she has been getting this infection once a month.



That's when I started looking for another doctor. I talked to a family friend who is a doctor and he explained that if it were him he would try a number of different things. It was then that I lost all faith in doctors and finding a definitive answer in any medical treatment. I decided I needed to advocate for my own childs health. I had to fight and I had to learn all about how to get the correct medical treatment. I decided first of all to drop the pediatrician and to take her to my general practitioner that I really respect and adore. She immediately referred us to an infectious disease specialist and ordered blood tests to see if she had some sort of autoimmune deficiency.



The blood tests were awful. The first try the nurses couldn't get a vein and poor Lorelai was poked and prodded for 10 minutes before they asked us to come back when another nurse would be there. I brought her back when the bruises healed and although still traumatic, they were able to get the blood, which came back fine.



We went to the infectious disease doctor and again, he didn't have too much insight. He explained that because it's on her bum and that area is warm and moist, it's a breeding ground for bacteria. A lot of the population is a carrier of staph but live completely normal, healthy lives with no complications. Lo has it on her skin but for whatever reason is not able to fight the bacteria. So as soon as she is potty trained the problem should go away. In the mean time we were given Bactroban cream to put in her nose for 7 days (that's where the staph bacteria grows) and for 30 days on her bum.



A few weeks after leaving the specialists office, she got another bout of infection. I called the infectious disease office and they wrote her for another antibiotic and were told that the cream probably did not have time to work.



Well this passed weekend I noticed a little bump on Lo's lower abdomen. That was Saturday. I thought it could be another staph break out, but because it was on her tummy I thought maybe it was just an irritation. Well, 5 am on Sunday morning she woke up crying. I went in and immediately felt she had a fever. I got her out of bed and gave her some tylenol. I changed her diaper and noticed that the little bump was now 10 times bigger and very red. I waited for the tylenol to kick in and put her back to bed until it was a better time to call the doctor. Just in the 4 hours from 5 until 9, that bump had gotten so large it was scary. I called the on call infectious disease doctor and he advised me to take her to the e.r. Since her fever was 103 and it was rapidly growing she needed to have it lanced immediately. I showered while Ty packed activities and snacks because he was convinced it would take hours to get out of there.

Didn't take long at all! They must have had concern as well because there were a few people in front of us, but they took us back first. The doctor agreed we needed to lance it. He asked if I wanted her to have a sedative, but because she had eaten something that morning she could vomit and get pneumonia. I decided against that and went with a local anesthetic. He then asked if I wanted to be in there helping or if I wanted to go in at the end and be the superhero.

This to me... is always a tough one. With having a child this young, you never know if they see you when these procedures are happening to them and blaming you or whether they are just happy you are there to be with them through it. I still, obviously, have no idea... but I just always think about these doctors and nurses that don't know her, that don't know how special she is, crowding around her and taking knives to her without me there. How scary that would be for her. Not only is she getting cut open, but her mommy isn't even there. This is how I ultimately decide every time. I could never leave her.

So long story short, they did get a culture and they did make a pretty large incision. It was much harder than the ones on her bum. Usually they take the head off it and then squeeze. This was anesthetic and a knife and a very large needle and scissors... don't even ask.

She of course freaked out, the only thing that stopped her from being a 10 freak out stage was me telling her we were going to get an ice cream cone. Every time she has to have something done that is her treat and she loves it. So I tried to talk to her and keep her as calm as I could. It was horrid and awful.

So where I am now is just bewildered. What do I do? We are at 6 infections, no one can tell me how to stop it, no one can tell me how to fix this... I don't know what to do. I know I don't want her to go through this anymore but I have no idea how to get to that point. Even on the internet I can't find an answer or a direction. We have another appointment with the infectious disease specialist next Monday. Clearly it's not because she isn't potty trained since this one was on her abdomen.

Anyway- I'll update after that appointment!